Psychosocial Intervention Psychosocial Intervention
Psychosocial Intervention 26 (2017) 93-101 - Vol. 26 No.2 DOI: 10.1016/j.psi.2016.11.002
Una aproximación cualitativa a los factores de resiliencia en familiares de personas con discapacidad intelectual en España
A qualitative approach to the resilience factors in families of people with intellectual disabilities in Spain
Lucía Oñate, , Esther Calvete
Departamento de Personalidad, Evaluación y Tratamiento Psicológico, Universidad de Deusto, España
Received 20 June 2016, Accepted 20 November 2016
Resumen

El apoyo a un familiar con discapacidad intelectual puede constituir una fuente importante de estrés. Este estudio explora los factores que contribuyen en el proceso de resiliencia de los familiares de personas con discapacidad intelectual españoles. Para ello se llevaron a cabo entrevistas en profundidad a 32 familiares cuidadores considerados «resilientes» por las asociaciones a las que pertenecen. Los resultados muestran como los familiares son capaces de utilizar diferentes recursos internos y externos para desarrollar resiliencia y adaptarse a la situación de cuidado. Los familiares describieron factores internos como la aceptación, el afrontamiento activo, la toma de perspectiva, el optimismo, la espiritualidad, la transformación en metas, tener una ocupación, el ocio, el mindfulness, vivir el presente y el autocuidado. También fueron mencionados factores externos como el apoyo formal e informal y la economía. Los resultados muestran como estos factores son dinámicos y pueden relacionarse entre ellos. Las implicaciones clínicas de este estudio son descritas.

Keywords
  • Familiares
  • Cuidadores
  • Discapacidad intelectual
  • Resiliencia
  • Factores protectores
Abstract

Caring for a family member with an intellectual disability can be an important source of stress. This study explores the factors contributing to the process of resilience in relatives of people with intellectual disabilities in Spain. For this purpose, in-depth interviews were conducted with 32 family caregivers considered ‘resilient’ by the associations they belonged. The results show that relatives are able to use different internal and external resources to build resilience and to adapt to the situation of care. The relatives mentioned internal factors such as acceptance, active coping, perspective taking, optimism, spirituality, goals, having an occupation, leisure, mindfulness, living in the present and self-care. External factors such as formal and informal support, and economy were also mentioned. The results show that these factors are dynamic and could be interconnected. The clinical implications of this study are described.

Keywords
  • Family
  • Caregivers
  • Intellectual disability
  • Resilience
  • Protective factors
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Psychosocial Intervention 26 (2017) 93-101 - Vol. 26 No.2 DOI: 10.1016/j.psi.2016.11.002